Kerry Fianna Fáil TD and Spokesperson on Primary Care, John Brassil has said that Minister Harris must intervene immediately to end the anguish being inflicted upon the 21 people who are at risk of losing access to Respreeza.
Deputy Brassil was commenting after the drug’s manufacturer, CSL Behring, informed the Department of Health that it would be ceasing its Compassionate Access Programme (CAP) at the end of September.
“This will have a devastating impact on the 21 people involved, including a man from the south of my own constituency, who are currently in the CAP and who risk seeing the benefits they have gained from being on the medication lost”, explained Deputy Brassil.
“Fianna Fáil has written to Minister Harris asking him to intervene directly in this matter.
“While agreement between the Department and the manufacturer has so far proven difficult to achieve, the Department of Health should, in the interim, commit to funding the drug for the 21 patients currently on the Compassionate Access Programme.
“These patients are at their wits end with worry. They are worried about their futures and Minister Harris must find a solution.
“The funding of this drug for these 21 patients must be made available. It is inconceivable that they would lose access to a drug that had dramatically improved their quality of life because the Department and the manufacturer have failed to find agreement.
“I am urging Minister Harris to do the right thing and commit to funding Respreeza for the 21 patients on the Compassionate Access Programme”, concluded Deputy Brassil.